Interdisciplinary psychosocial care for families with inherited cardiovascular diseases

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• 作者：Colleen Caleshu ; MS ; LCGC^a ; Nadine A. Kasparian ; BA ; PhD ; MAPS^b ; ^c ; Katharine S. Edwards ; PhD^a ; Laura Yeates ; GradDipGenCouns^d ; ^e ; ^f ; Christopher Semsarian ; MBBS ; PhD ; MPH^d ; ^e ; ^f ; Marco Perez ; MD^a ; Euan Ashley ; MD ; PhD^a ; Christian J. Turner ; MBBS^b ; Joshua W. Knowles ; MD ; PhD^a ; Jodie Ingles ; GradDipGenCouns ; MPH ; PhD^d ; ^e ; ^f ; ^{j.ingles@centenary.org.au" class="auth_mail" title="E-mail the corresponding author}
• 关键词：Psychological wellbeing ; Genetic testing ; Hypertrophic cardiomyopathy ; Quality of life
• 刊名：Trends in Cardiovascular Medicine
• 出版年：2016
• 出版时间：October 2016
• 年：2016
• 卷：26
• 期：7
• 页码：647-653
• 全文大小：518 K

文摘

Inherited cardiovascular diseases pose unique and complex psychosocial challenges for families, including coming to terms with life-long cardiac disease, risk of sudden death, grief related to the sudden death of a loved one, activity restrictions, and inheritance risk to other family members. Psychosocial factors impact not only mental health but also physical health and cooperation with clinical recommendations. We describe an interdisciplinary approach to the care of families with inherited cardiovascular disease, in which psychological care provided by specialized cardiac genetic counselors, nurses, and psychologists is embedded within the cardiovascular care team. We report illustrative cases and the supporting literature to demonstrate common scenarios, as well as practical guidance for clinicians working in the inherited cardiovascular disease setting.