- 作者：K. Revert ; J. Pengam ; M.-L. Madec ; L. Audran ; L. Maitrallin ; P. Lesné
- 刊名：Journal of Cystic Fibrosis
- 出版年：2015
- 出版时间：June 2015
- 年：2015
- 卷：14
- 期：supp_S1
- 页码：S128
- 全文大小：61 K
Objectives
In patients aged 2–12 y, to attain a mean BMI Z-score = 0 and improve the mean FEV1 at the end of 2014.
Methods
FEV1% and BMI Z-scores were analysed for 139 patients (patient registry data 2010). The children aged 2–12 (n = 34) were selected as the intervention group as BMI Z-score varied from −3.5 to +1.8 (mean −0.5). Children were classified in 4 colour groups according to their BMI Z-score and a new process elaborated: in addition to shared baseline care, the number of consultations with a dietitian, calorie-intake evaluations, stool fat analyses, prescription of oral supplements varied for each group. Information was given to parents about
- i.
the relationship between nutritional status and FEV1 illustrated with results from large international studies,
- ii.
colour-coded BMI curve with the child path on the chart,
- iii.
calorie-equivalent snack suggestions.
Home weekly weighing, individual weight gain objectives, psychological follow up and discusssion about G tube feeding were items included for the more severe groups.
Results
All children arriving at 2 y were included and those beyond 12 y remained included (n = 44 in December 2014). Their mean BMI Z-score was −0.22 while mean FEV1 remained at 85%. Four children were still in the red zone. The % of children in the green or yellow zones increased from 53% to 64%.
Conclusion
PHARE-M helped improve the nutritional status of most children 2–12 y, after three years collaboration between parents and the MDT, who is now focusing of the nutritional status of infants.