Limitations to providing adult cystic fibrosis care in Europe: Results of a care centre survey

详细信息    查看全文

• 作者：Susan Madge^a ; ^{s.madge@rbht.nhs.uk} ; Scott C. Bell^b ; ^c ; ^d ; Pierre- Ré ; gis Burgel^e ; ^f ; Karleen De Rijcke^g ; Francesco Blasi^h ; ⁱ ; J. Stuart Elborn^j ; on behalf of the ERS/ECFS task force ; The provision of care for adults with cystic fibrosis in Europe
• 关键词：Cystic fibrosis ; Service provision ; Adults ; Eastern Europe ; Western Europe
• 刊名：Journal of Cystic Fibrosis
• 出版年：2017
• 出版时间：January 2017
• 年：2017
• 卷：16
• 期：1
• 页码：85-88
• 全文大小：353 K
• 卷排序：16

文摘

There are a growing number of adults in Europe with a projected increase of 75% over the next decade. There is concern that provision of care will not be sufficient to meet needs. We aimed to establish the level of CF service throughout Europe.MethodsAn online survey designed by clinicians and patient representatives to explore level of service.ResultsTraining opportunities for clinicians and resources (physical and manpower) to provide care to adults with CF are limited in Europe. Although specific adult CF care has been identified, teams continue to be supported by paediatric colleagues and many adults are still being admitted to paediatric wards. In some centres, service delivery, particularly infection control and access to some CF medication is insufficient and in many places poor personnel resources limits access to comprehensive multidisciplinary teams.ConclusionsThis survey shows an urgent need for the development of resources for adult CF care, in both physical space and appropriately trained clinicians.