The availability and affordability of orphan drugs for rare diseases in China
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- 作者：Shiwei Gong ; Yingxiao Wang ; Xiaoyun Pan ; Liang Zhang…
- 关键词：Rare disease ; Orphan drug ; Availability ; Price ; Affordability ; China
- 刊名：Orphanet Journal of Rare Diseases
- 出版年：2016
- 出版时间：December 2016
- 年：2016
- 卷：11
- 期：1
- 全文大小：525 KB
- 刊物主题：Medicine/Public Health, general; Pharmacology/Toxicology; Medicinal Chemistry;
- 出版者：BioMed Central
- ISSN：1750-1172
文摘
Background Orphan drugs are intended to treat, prevent or diagnose rare diseases. In recent years, China healthcare policy makers and patients have become increasingly concerned about orphan drug issues. However, very few studies have assessed the availability and affordability of orphan drugs for rare diseases in China. The aim of this study was to provide an overview of the availability and affordability of orphan drugs in China and to make suggestions to improve patient access to orphan drugs.