EULAR-Empfehlungen für die Schulung von Patienten mit entzündlich-rheumatischen Gelenkerkrankungen

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• 作者：J. Patermann ; I. Ehlebracht-König ; G. Lind-Albrecht…
• 关键词：Patient education ; Arthritis ; Recommendation ; EULAR ; DGRh
• 刊名：Zeitschrift f¨¹r Rheumatologie
• 出版年：2016
• 出版时间：March 2016
• 年：2016
• 卷：75
• 期：2
• 页码：187-199
• 全文大小：368 KB
• 参考文献：1.Abourazzak F, El L, Huchet D et al (2009) Long-term effects of therapeutic education for patients with rheumatoid arthritis. Joint Bone Spine 76:648–653CrossRef PubMed
  2.Adab P, Rankin ECC, Witney AG et al (2004) Use of a corporate needs assessment to define the information requirements of an arthritis resource centre in Birmingham: comparison of patients’ and professionals’ views. Rheumatology (Oxford) 43:1513–1518CrossRef
  3.Ahlmen M, Nordenskiold U, Archenholtz B et al (2005) Rheumatology outcomes: the patient’s perspective. A multicentre focus group interview study of Swedish rheumatoid arthritis patients. Rheumatology (Oxford) 44:105–110CrossRef
  4.Albano G, Giraudet-le Quintrec J, Crozet C (2010) Characteristics and development of therapeutic patient education in rheumatoid arthritis: Analysis of the 2003–2008 literature. Joint Bone Spine 77:405–410CrossRef PubMed
  5.Astin JA, Beckner W, Soeken K et al (2002) Psychological interventions for rheumatoid arthritis: a meta-analysis of randomized controlled trials. Arthritis Rheum 47:291–302CrossRef PubMed
  6.Bandura A (1997) Self-efficacy: the exercise of control. W.H.Freeman & Co Ltd, New York
  7.Barsky AJ, Ahern DK, Orav EJ et al (2010) A randomized trial of three psychosocial treatments for the symptoms of rheumatoid arthritis. Semin Arthritis Rheum 40:222–232CrossRef PubMed PubMedCentral
  8.van den Berg MH, Ronday HK, Peeters AJ et al (2006) Using internet technology to deliver a home-based physical activity intervention for patients with rheumatoid arthritis: a randomized controlled trial. Arthritis Rheum 55:935–945CrossRef PubMed
  9.Bergsten U, Bergman S, Fridlund B, Arvidsson B (2011) „Striving for a good life“ – the management of rheumatoid arthritis as experienced by patients. Open Nurs J 5:95–101CrossRef PubMed PubMedCentral
  10.Bergsten U, Bergman S, Fridlund B, Arvidsson B (2011) „Delivering knowledge and advice“: healthcare providers’ experiences of their interaction with patients’ management of rheumatoid arthritis. Int J Qual Stud Health Well-being. doi:10.3402/qhw.v6i4.8473PubMed PubMedCentral
  11.Bode C, Taal E, Emons PAA et al (2008) Limited results of group self-management education for rheumatoid arthritis patients and their partners: explanations from the patient perspective. Clin Rheumatol 27:1523–1528CrossRef PubMed
  12.Breedland I, Van Scheppingen C, Verheij-Jansen NP, Van Weert E (2011) Research report effects of a group-based exercise and educational program on physical performance and disease self-management in rheumatoid arthritis. Phys Ther 91:879–893CrossRef PubMed
  13.Brodin N, Eurenius E, Jensen I et al (2008) Coaching patients with early rheumatoid arthritis to healthy physical activity: a multicenter, randomized, controlled study. Arthritis Rheum 59:325–331CrossRef PubMed
  14.Brosseau L, Lineker S, Bell M (2010) People getting a grip on arthritis: a knowledge transfer strategy to empower patients with rheumatoid arthritis and osteoarthritis. Heal Educ J 71:255–261CrossRef
  15.de Brouwer SJM, Kraaimaat FW, Sweep FCGJ et al (2011) Psychophysiological responses to stress after stress management training in patients with rheumatoid arthritis. PLOS One 6:e27432CrossRef PubMed PubMedCentral
  16.Carson JW, Keefe FJ, Affleck G et al (2006) A comparison of conventional pain coping skills training and pain coping skills training with a maintenance training component: a daily diary analysis of short- and long-term treatment effects. J Pain 7:615–625CrossRef PubMed
  17.Chewning B, Bylund CL, Shah B et al (2012) Patient preferences for shared decisions: a systematic review. Patient Educ Couns 86:9–18CrossRef PubMed PubMedCentral
  18.Christie A, Jamtvedt G, Dahm KT et al (2007) Effectiveness of Nonpharmacological and nonsurgical interventions for patients with rheumatoid arthritis : an overview of systematic reviews. Phys Ther 87:1697–1715CrossRef PubMed
  19.Claudepierre P, Flipo R-M, Sibilia J et al (2004) Patient knowledge of their disease: a French multicenter study in ankylosing spondylitis. Joint Bone Spine 71:550–556CrossRef PubMed
  20.Combe B, Landewe R, Lukas C et al (2007) EULaR recommendations for the management of early arthritis: report of a task force of the European Standing Committee for International Clinical Studies including therapeutics (ESCISIT). Ann Rheum Dis 66:34–45CrossRef PubMed PubMedCentral
  21.Conn DL, Pan Y, Easley KA et al (2013) The effect of the arthritis self-management program on outcome in African Americans with rheumatoid arthritis served by a public hospital. Clin Rheumatol 32:49–59CrossRef PubMed
  22.Cramp F, Hewlett S, Almeida C et al (2013) Non-pharmacological interventions for fatigue in rheumatoid arthritis (review). Cochrane Database Syst Rev. doi:10.1002/14651858.CD008322.pub2PubMed
  23.Dissanayake RK, Bertouch JV (2010) Psychosocial interventions as adjunct therapy for patients with rheumatoid arthritis: a systematic review. Int J Rheum Dis 13:324–334CrossRef PubMed
  24.Dougados M, Betteridge N, Burmester GR et al (2004) EULAR standardised operating procedures for the elaboration, evaluation, dissemination, and implementation of recommendations endorsed by the EULAR standing committees. Ann Rheum Dis 63:1172–1176CrossRef PubMed PubMedCentral
  25.Dures E, Kitchen K, Almeida C et al (2012) “They didn’t tell us, they made us work it out ourselves”: patient perspectives of a cognitive-behavioral program for rheumatoid arthritis fatigue. Arthritis Care Res 64:494–501CrossRef
  26.Ehlebracht-König I, Bönisch A (2008) Patientenschulung im frühen Krankheitsmanagement der Spondylitis ankylosans und verwandter Spondyloarthritiden. Wien Med Wochenschr 158:213–217CrossRef PubMed
  27.Faller H, Ehlebracht-König I, Reusch A (2015) Empowerment durch Patientenschulung in der Rheumatologie. Z Rheumatol 74:603–608CrossRef PubMed
  28.Giraudet-le Quintrec J, Mayoux-benhamou A, Ravaud P et al (2007) Effect of a collective educational program for patients with rheumatoid arthritis: a prospective 12-month randomized controlled trial. J Rheumatol 34:1684–1691PubMed
  29.Grønning K, Skomsvoll JF, Rannestad T, Steinsbekk A (2012) Patient education and counseling. The effect of an educational programme consisting of group and individual arthritis education for patients with polyarthritis – a randomised controlled trial. Patient Educ Couns 88:113–120CrossRef PubMed
  30.Hammond A, Bryan J, Hardy A (2008) Effects of a modular behavioural arthritis education programme: a pragmatic parallel-group randomized controlled trial. Rheumatology (Oxford) 47:1712–1718CrossRef
  31.Hammond A, Freeman K (2004) The long-term outcomes from a randomized controlled trial of an educational-behavioural joint protection programme for people with rheumatoid arthritis. Clin Rehabil 18:520–528CrossRef PubMed
  32.Hammond A, Young A, Kidao R (2004) A randomised controlled trial of occupational therapy for people with early rheumatoid arthritis. Ann Rheum Dis 63:23–30CrossRef PubMed PubMedCentral
  33.Hewlett S, Ambler N, Almeida C et al (2011) Self-management of fatigue in rheumatoid arthritis: a randomised controlled trial of group cognitive-behavioural therapy. Ann Rheum Dis 70:1060–1067CrossRef PubMed PubMedCentral
  34.Hirsh D, Clerehan R, Staples M et al (2009) Patient assessment of medication information leaflets and validation of the Evaluative Linguistic Framework (ELF). Patient Educ Couns 77:248–254CrossRef PubMed
  35.Hofmann SG, Asmundson GJG (2008) Acceptance and mindfulness-based therapy: new wave or old hat? Clin Psychol Rev 28:1–16CrossRef PubMed
  36.Homer D, Nightingale P, Jobanputra P (2009) Providing patients with information about disease-modifying anti-rheumatic drugs: Individually or in groups? A pilot randomized controlled trial comparing adherence and satisfaction. Musculoskeletal Care 7:78–92CrossRef PubMed
  37.Johansson K, Katajisto J, Salantera S (2010) Pre-admission education in surgical rheumatology nursing: towards greater patient empowerment. J Clin Nurs 19:2980–2988CrossRef PubMed
  38.John H, Hale ED, Treharne GJ, Kitas GD (2007) Patient education on cardiovascular aspects of rheumatoid disease: an unmet need. Rheumatology (Oxford) 46:1513–1516CrossRef
  39.Klarenbeek NB, Kerstens PJSM, Huizinga TWJ et al (2010) Recent advances in the management of rheumatoid arthritis. BMJ 341:c6942CrossRef PubMed
  40.Knittle K, Maes S, de Gucht V (2010) Psychological interventions for rheumatoid arthritis: examining the role of self-regulation with a systematic review and meta-analysis of randomized controlled trials. Arthritis Care Res 62:1460–1472CrossRef
  41.Krauth C, Rieger J, Bönisch A, Ehlebracht-König I (2003) Costs and benefits of an education program for patients with ankylosing spondylitis as part of an inpatient rehabilitation programs-study design and first results. Z Rheumatol 62:II14–II16CrossRef PubMed
  42.Kristiansen TM, Primdahl J, Antoft R, Horslev-Petersen K (2012) Everyday life with rheumatoid arthritis and implications for patient education and clinical practice: a focus group study. Musculoskeletal Care 10:29–38CrossRef PubMed
  43.Langer H (1994) Patientenschulung in der Rheumatologie. Akt Rheumatol 19:3–13CrossRef
  44.Langer HEBH (1989) Krankheitswissen, Informationsbedürfnisse und Informationsbedarf von Patenten mit ankylosierender Spondylitis. Akt Rheumatol 14:35–41CrossRef
  45.van Lankveld W, van Helmond T, Naring G et al (2004) Partner participation in cognitive-behavioral self-management group treatment for patients with rheumatoid arthritis. J Rheumatol 31:1738–1745PubMed
  46.Leung Y-Y, Tam LS, Lee KW et al (2009) Involvement, satisfaction and unmet health care needs in patients with psoriatic arthritis. Rheumatology (Oxford) 48:53–56CrossRef
  47.Lind-Albrecht G (2006) Patientenschulung in der Rheumatologie : Ein Weg zum besseren Krankheitsmanagement durch Kompetenzsteigerung bei den Betroffenen. Wien Med Wochenschr 156(21–22):583–586CrossRef PubMed
  48.Lorig KR, Holman H (2003) Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med 26:1–7CrossRef PubMed
  49.Lorig KR, Ritter PL, Laurent DD (2008) The Internet-based arthritis self-management program : a one-year randomized trial for patients with arthritis or fibromyalgia. Arthritis Rheum 59:1009–1017CrossRef PubMed
  50.Lovisi Neto B, Jennings F, Ohashi CB et al (2009) Evaluation of the efficacy of an educational program for rheumatoid arthritis patients. Clin Exp Rheumatol 27:28–34PubMed
  51.Masiero S, Boniolo A, Wassermann L (2007) Effects of an educational – behavioral joint protection program on people with moderate to severe rheumatoid arthritis: a randomized controlled trial. Clin Rheumatol 26(12):2043–2050CrossRef PubMed
  52.Mathieux R, Marotte H, Battistini L et al (2009) Early occupational therapy programme increases hand grip strength at 3 months: results from a randomised, blind, controlled study in early rheumatoid arthritis. Ann Rheum Dis 68:400–403CrossRef PubMed
  53.Mayoux-benhamou A, Quintrec JG, Ravaud P et al (2008) a prospective 12-month randomized controlled trial . influence of patient education on exercise compliance in rheumatoid arthritis : a prospective 12-month randomized controlled trial. J Rheumatol 35:216–223PubMed
  54.Meesters J, Vlieland T, Hill J, Ndosi ME (2009) Measuring educational needs among patients with rheumatoid arthritis using the Dutch version of the Educational Needs Assessment Tool (DENAT). Clin Rheumatol 28(9):1073–1077CrossRef PubMed PubMedCentral
  55.Meesters JJL, de Boer IG, van den Berg MH et al (2012) Evaluation of a website providing information on regional health care services for patients with rheumatoid arthritis: an observational study. Clin Rheumatol 31:637–645CrossRef PubMed PubMedCentral
  56.El Miedany Y, El Gaafary M, El Arousy N et al (2012) Arthritis education: the integration of patient-reported outcome measures and patient self-management. Clin Exp Rheumatol 30:899–904PubMed
  57.Mitton DL, Treharne GJ, Hale ED et al (2007) The health and life experiences of mothers with rheumatoid arthritis: a phenomenological study. Musculoskeletal Care 5:191–205CrossRef PubMed
  58.Mohammad A, Kilcoyne A, Bond U et al (2009) Methotrexate information booklet study 2008. Clin Exp Rheumatol 27:649–650PubMed
  59.Newman S, Steed L, Mulligan K (2004) Self-management interventions for chronic illness. Lancet 364:1523–1537CrossRef PubMed
  60.Niedermann K, de Bie RA, Kubli R et al (2011) Effectiveness of individual resource-oriented joint protection education in people with rheumatoid arthritis. A randomized controlled trial. Patient Educ Couns 82:42–48CrossRef PubMed
  61.Niedermann K, Buchi S, Ciurea A et al (2012) Six and 12 months’ effects of individual joint protection education in people with rheumatoid arthritis: a randomized controlled trial. Scand J Occup Ther 19:360–369CrossRef PubMed
  62.Niedermann K, Fransen J, Knols R, Uebelhart D (2004) Gap between short- and long-term effects of patient education in rheumatoid arthritis patients: a systematic review. Arthritis Rheum 51:388–398CrossRef PubMed
  63.Nunez M (2006) Health-related quality of life in rheumatoid arthritis : therapeutic education plus pharmacological treatment versus pharmacological treatment only. Rheumatol Int 8:752–757CrossRef
  64.O’Brien AV, Jones P, Mullis R et al (2006) Conservative hand therapy treatments in rheumatoid arthritis – a randomized controlled trial. Rheumatology (Oxford) 45:577–583CrossRef
  65.Oh H, Seo W (2003) Decreasing pain and depression in a health promotion program for people with rheumatoid arthritis. J Nurs Scholarsh 35:127–132CrossRef PubMed
  66.Ornbjerg LM, Andersen HB, Kryger P et al (2008) What do patients in rheumatologic care know about the risks of NSAIDs? J Clin Rheumatol 14:69–73CrossRef PubMed
  67.Parker JC, Smarr KL, Slaughter JR et al (2003) Management of depression in rheumatoid arthritis: a combined pharmacologic and cognitive-behavioral approach. Arthritis Rheum 49:766–777CrossRef PubMed
  68.Pradhan EK, Baumgarten M, Langenberg P et al (2007) Effect of mindfulness-based stress reduction in rheumatoid arthritis patients. Arthritis Rheum 57:1134–1142CrossRef PubMed
  69.Primdahl J, Wagner L, Horslev-Petersen K (2011) Being an outpatient with rheumatoid arthritis – a focus group study on patients’ self-efficacy and experiences from participation in a short course and one of three different outpatient settings. Scand J Caring Sci 25:394–403CrossRef PubMed
  70.Radford S, Carr M, Hehir M et al (2008) “It’s quite hard to grasp the enormity of it”: perceived needs of people upon diagnosis of rheumatoid arthritis. Musculoskeletal Care 6:155–167CrossRef PubMed
  71.Ravindran V, Jadhav R (2013) The effect of rheumatoid arthritis disease education on adherence to medications and followup in Kerala, India. J Rheumatol 40:1460–1461CrossRef PubMed
  72.de Ridder D, Geenen R, Kuijer R, van Middendorp H (2008) Psychological adjustment to chronic disease. Lancet 372:246–255CrossRef PubMed
  73.Riemsma RP, Taal E, Kirwan JR, Rasker JJ (2004) Systematic review of rheumatoid arthritis patient education. Arthritis Rheum 51:1045–1059CrossRef PubMed
  74.Rudd RE, Blanch DC, Gall V et al (2009) A randomized controlled trial of an intervention to reduce low literacy barriers in inflammatory arthritis management. Patient Educ Couns 75:334–339CrossRef PubMed PubMedCentral
  75.Ryan S, Lillie K, Thwaites C, Adams J (2013) “What I want clinicians to know”– experiences of people with arthritis. Br J Nurs 22:808–812CrossRef PubMed
  76.Schildmann J, Grunke M, Kalden JR, Vollmann J (2008) Information and participation in decision-making about treatment: a qualitative study of the perceptions and preferences of patients with rheumatoid arthritis. J Med Ethics 34:775–779CrossRef PubMed
  77.Schwarzer R (2008) Modeling health behavior change: how to predict and modify the adoption and maintenance of health behaviors. Appl Psychol 57:1–29
  78.Schwarzer R, Lippke S, Luszczynska A (2011) Mechanisms of health behavior change in persons with chronic illness or disability: the Health Action Process Approach (HAPA). Rehabil Psychol 56:161–170CrossRef PubMed
  79.Sharpe L, Allard S, Sensky T (2008) Five-year followup of a cognitive-behavioral intervention for patients with recently-diagnosed rheumatoid arthritis: effects on health care utilization. Arthritis Rheum 59:311–316CrossRef PubMed
  80.Sharpe L, Curran L (2006) Understanding the process of adjustment to illness. Soc Sci Med 62:1153–1166CrossRef PubMed
  81.Sharpe L, Schrieber L (2012) A blind randomized controlled trial of cognitive versus behavioral versus cognitive-behavioral therapy for patients with rheumatoid arthritis. Psychother Psychosom 81:145–152CrossRef PubMed
  82.Sharpe L, Sensky T, Timberlake N et al (2003) Long-term efficacy of a cognitive behavioural treatment from a randomized controlled trial for patients recently diagnosed with rheumatoid arthritis. Rheumatology (Oxford) 42:435–441CrossRef
  83.Stoffer MA, Smolen JS, Woolf A et al (2014) Development of patient-centred standards of care for rheumatoid arthritis in Europe: the eumusc.net project. Ann Rheum Dis 73:902–905CrossRef PubMed PubMedCentral
  84.Werner CAM, Kaliski KS, Salazar QK et al (2006) Knowledge about their disease and treatment among patients with rheumatoid arthritis. Rev Med Chil 134:1500–1506CrossRef
  85.Zangi HA, Ndosi M, Adams J et al (2015) EULAR recommendations for patient education for people with inflammatory arthritis. Ann Rheum Dis 0:1–9
  86.Zangi HA, Hauge M-I, Steen E et al (2011) “I am not only a disease, I am so much more”. Patients with rheumatic diseases’ experiences of an emotion-focused group intervention. Patient Educ Couns 85:419–424CrossRef PubMed
  87.Zangi HA, Mowinckel P, Finset A et al (2012) A mindfulness-based group intervention to reduce psychological distress and fatigue in patients with inflammatory rheumatic joint diseases: a randomised controlled trial. Ann Rheum Dis 71:911–917CrossRef PubMed
  88.Zautra AJ, Davis MC, Reich JW et al (2008) Comparison of cognitive behavioral and mindfulness meditation interventions on adaptation to rheumatoid arthritis for patients with and without history of recurrent depression. J Consult Clin Psychol 76:408–421CrossRef PubMed
  89.Zochling J, van der Heijde D, Collantes E et al (2006) ASAS/EULAR recommendations for the management of ankylosing spondylitis. Ann Rheum Dis 65:442–452CrossRef PubMed PubMedCentral
  90.Zwikker H, van den Bemt B, van den Ende C et al (2012) Development and content of a group-based intervention to improve medication adherence in non-adherent patients with rheumatoid arthritis. Patient Educ Couns 89:143–151CrossRef PubMed
  
• 作者单位：J. Patermann (1)
  I. Ehlebracht-König (2)
  G. Lind-Albrecht (3)
  E. Genth (4)
  A. Reusch (5)
  R. Küffner (5)
  U. Müller-Ladner (6)
  Prof. Dr. J. Braun (1) (7)
  
  1. Deutsche Gesellschaft für Rheumatologie, Berlin, Deutschland
  2. Rehazentrum Bad Eilsen, Bad Eilsen, Deutschland
  3. Schwerpunkt für Rheumatologie, Klin. Immunologie und Osteologie, Früharthritis-Klinik, Evangelisches Krankenhaus Düsseldorf, Düsseldorf, Deutschland
  4. Aachen, Deutschland
  5. Abteilung für Medizinische Psychologie, Medizinische Soziologie und Rehabilitationswissenschaften, Universität Würzburg, Würzburg, Deutschland
  6. Abt. für Rheumatologie und Klinische Immunologie, Justus-Liebig Universität Gießen, Bad Nauheim, Deutschland
  7. Rheumazentrum Ruhrgebiet, Landgrafenstr. 15, 44652, Herne, Deutschland
  
• 刊物主题：Internal Medicine; Rheumatology;
• 出版者：Springer Berlin Heidelberg
• ISSN：1435-1250

文摘

In 2015 EULAR published recommendations for patient education of people with inflammatory arthritis. The recommendations included two superior principles and eight recommendations based on the level of evidence and expert knowledge. The German translation of the recommendations was evaluated by 15 German experts. Experts graded the strength of the recommendations (SOR) on an 11 point numerical rating scale (from 0 = no agreement to 10 = total agreement). The mean score was 8,8 ± 0,49.