Health-related quality of life and unmet healthcare needs in Huntington’s disease

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• 作者：Marleen R. van Walsem ; Emilie I. Howe…
• 关键词：Huntington’s disease ; Health ; related Quality of Life ; Healthcare needs ; Healthcare services ; EQ ; 5D ; NPCS
• 刊名：Health and Quality of Life Outcomes
• 出版年：2017
• 出版时间：January 2017
• 年：2017
• 卷：15
• 期：1
• 全文大小：795KB
• 刊物主题：Quality of Life Research; Quality of Life Research;
• 出版者：BioMed Central
• ISSN：1477-7525
• 卷排序：15

文摘

BackgroundHuntington’s disease (HD) is a rare neurodegenerative disorder with a prevalence of 6 per 100.000. Despite increasing research activity on HD, evidence on healthcare utilization, patients’ needs for healthcare services and Health-Related Quality of Life (HRQoL) is still sparse. The present study describes HRQoL in a Norwegian cohort of HD patients, and assesses associations between unmet healthcare and social support service needs and HRQoL.