Quality of life in patients with hereditary haemorrhagic telangiectasia (HHT)

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• 作者：Roberto Zarrabeitia ; Concepción Fariñas-Álvarez…
• 关键词：HHT ; Hereditary hemorrhagic telangiectasia ; Rendu Osler ; Euroqol ; Qol
• 刊名：Health and Quality of Life Outcomes
• 出版年：2017
• 出版时间：January 2017
• 年：2017
• 卷：15
• 期：1
• 全文大小：627KB
• 刊物主题：Quality of Life Research; Quality of Life Research;
• 出版者：BioMed Central
• ISSN：1477-7525
• 卷排序：15

文摘

BackgroundThere are very few studies about general quality of life parameters, standards for the description of health status and comparison with general population data on patients with Hereditary hemorrhagic telangiectasia (HHT), a rare disease in which epistaxis is a cardinal symptom.