作者：Sara D Khangura (1)
Maria D Karaceper (1)
Yannis Trakadis (2)
John J Mitchell (2)
Pranesh Chakraborty (1) (3)
Kylie Tingley (1)
Doug Coyle (1)
Scott D Grosse (4)
Jonathan B Kronick (5) (6)
Anne-Marie Laberge (7)
Julian Little (1)
Chitra Prasad (8)
Lindsey Sikora (1)
Komudi Siriwardena (6)
Rebecca Sparkes (9)
Kathy N Speechley (8)
Sylvia Stockler (10)
Brenda J Wilson (1)
Kumanan Wilson (11)
Reem Zayed (1)
Beth K Potter (1)
on behalf of the Canadian Inherited Metabolic Diseases Research Network (CIMDRN)

1. University of Ottawa ; 451 Smyth Road ; Ottawa ; ON ; Canada
2. Montreal Children鈥檚 Hospital ; McGill University Health Centre ; 2300 Tupper Street ; Montreal ; QC ; Canada
3. Newborn Screening Ontario ; Children鈥檚 Hospital of Eastern Ontario ; 415 Smyth Road ; Ottawa ; ON ; Canada
4. National Center on Birth Defects and Developmental Disabilities ; Centers for Disease Control and Prevention ; 1600 Clifton Road ; Atlanta ; GA ; USA
5. University of Toronto ; 27 King鈥檚 College Circle ; Toronto ; ON ; Canada
6. Hospital for Sick Children ; 555 University Avenue ; Toronto ; ON ; Canada
7. Centre Hospitalier Universitaire Sainte-Justine ; 3175 Chemin de la C么te-Sainte-Catherine ; Montreal ; QC ; Canada
8. Western University ; 1151 Richmond Street ; London ; ON ; Canada
9. Alberta Children鈥檚 Hospital ; 2888 Shaganappi Trail NW ; Calgary ; AB ; Canada
10. British Columbia Children鈥檚 Hospital ; 4480 Oak Street ; Vancouver ; BC ; Canada
11. Ottawa Hospital Research Institute ; 725 Parkdale Avenue ; Ottawa ; ON ; Canada

关键词：Patient ; centered outcomes research ; Patient ; centered care ; Outcomes research ; Outcome measures ; Metabolism ; Inborn errors ; Assessment ; Patient outcomes ; Rare diseases ; Family ; centered care

刊名：BMC Pediatrics

出版年：2015

作者： Tanjala S. Purnell ; Thomas J. Lynch…

刊名：The Patient - Patient-Centered Outcomes Research

出版年：2016

作者： Kristen N. Jozkowski ; Brandon L. Crawford

刊名：Sexuality Research and Social Policy

出版年：2016

作者：Joanne Armstrong (1)
Michele Toscano (1)
Nancy Kotchko (1)
Sue Friedman (2)
Marc D. Schwartz (3)
Katherine S. Virgo (4) (5)
Kristian Lynch (6)
James E. Andrews (7)
Claudia X. Aguado Loi (8)
Joseph E. Bauer (4)
Carolina Casares (4)
Rachel Threet Teten (6)
Matthew R. Kondoff (6)
Ashley D. Molina (6)
Mehrnaz Abdollahian (9)
Lana Brand (10) (7)
Gregory S. Walker (4)
Rebecca Sutphen (6)

1. Women鈥檚 Health ; Aetna ; Hartford ; CT ; USA
2. Facing Our Risk of Cancer Empowered ; Inc (FORCE) ; Tampa ; FL ; USA
3. Lombardi Comprehensive Cancer Center ; Georgetown University ; Washington ; DC ; USA
4. American Cancer Society ; Inc ; Atlanta ; GA ; USA
5. School of Public Health ; Emory University Rollins ; Atlanta ; GA ; USA
6. Morsani College of Medicine Epidemiology Center ; University of South Florida ; 3650 Spectrum Blvd ; Suite 100 ; Tampa ; FL ; 33612 ; USA
7. School of Information ; University of South Florida ; Tampa ; FL ; USA
8. Department of Child and Family Studies ; University of South Florida ; Tampa ; FL ; USA
9. Department of Industrial and Management Systems Engineering ; University of South Florida ; Tampa ; FL ; USA
10. Northeast Georgia Health System ; Gainesville ; USA

关键词：Hereditary breast and ovarian cancer (HBOC) ; BRCA1 ; BRCA2 ; BRCA ; Genetic testing ; Breast cancer ; Ovarian cancer

刊名：Journal of Genetic Counseling

出版年：2015

作者： Dawn Stacey ; France Légaré ; Anne Lyddiatt…

刊名：The Patient - Patient-Centered Outcomes Research

出版年：2016

关键词：Alternative stormwater ; Green infrastructure ; Stream daylighting ; Stream restoration ; Urban streams

刊名：The Handbook of Environmental Chemistry

出版年：2016

作者： Kimberly A. Sharkins ; Allison B. Newton…

刊名：Early Childhood Education Journal

出版年：2016

作者：Kathryn T. Weber (1)
Timothy D. Jacobsen (1)
Robert Maidhof (1)
Justin Virojanapa (2)
Chris Overby (2)
Ona Bloom (1) (3)
Shaheda Quraishi (2) (3)
Mitchell Levine (2)
Nadeen O. Chahine (1) (2) (4)

1. Biomechanics and Bioengineering Lab ; Center for Autoimmune and Musculoskeletal Diseases ; The Feinstein Institute for Medical Research ; Manhasset ; NY ; 11030 ; USA
2. Department of Neurosurgery ; Hofstra North Shore-LIJ School of Medicine ; 350 Community Drive ; Manhasset ; NY ; 11030 ; USA
3. Department of Physical Medicine and Rehabilitation ; Hofstra North Shore-LIJ School of Medicine ; 350 Community Drive ; Manhasset ; NY ; 11030 ; USA
4. Department of Molecular Medicine ; Hofstra North Shore-LIJ School of Medicine ; 350 Community Drive ; Manhasset ; NY ; 11030 ; USA

关键词：Spine ; Intervertebral disc ; Back pain ; Inflammation ; Tissue engineering ; Stem cells ; Biomaterials

刊名：Current Reviews in Musculoskeletal Medicine

出版年：2015

作者：Donald L. Patrick (1)
Charles S. Cleeland (2)
Roger von Moos (3)
Lesley Fallowfield (4)
Rachel Wei (5)
Katarina 脰hrling (5)
Yi Qian (5)

1. Department of Health Services ; University of Washington ; Box 359455 ; 4333 Brooklyn Ave NE ; Rm 14-101 ; Seattle ; WA ; 98195-9455 ; USA
2. Department of Symptom Research ; University of Texas MD Anderson Cancer Center ; Houston ; TX ; USA
3. Department of Oncology and Hematology ; Cantonal Hospital Graub眉nden ; Chur ; Switzerland
4. Sussex Health Outcomes Research and Education in Cancer (SHORE-C) ; University of Sussex ; Falmer ; UK
5. Amgen Inc. ; Thousand Oaks ; CA ; USA

关键词：Pain ; Bone metastases ; Cancer ; Bone ; targeting agents ; Denosumab ; Zoledronic acid ; Bisphosphonates ; Radiotherapy ; Analgesia ; Quality of life

刊名：Supportive Care in Cancer

出版年：2015

作者：Paula K Shireman (2)
Todd E Rasmussen (3) (4)
Carlos A Jaramillo (5)
Mary Jo Pugh (6)

2. Department of Surgery ; Sam and Ann Barshop Institute for Longevity and Aging Studies ; University of Texas Health Science Center San Antonio ; The South Texas Veterans Health Care System ; 7703 Floyd Curl Drive ; MC 7790 ; San Antonio ; TX ; 78229-3900 ; USA
3. US Combat Casualty Care Research Program ; Fort Detrick ; Frederick ; MD ; 21702-5012 ; USA
4. The Uniformed Services University ; Bethesda ; MD ; 20814 ; USA
5. Department of Rehabilitation Medicine ; University of Texas Health Science Center San Antonio ; Polytrauma Rehabilitation Center ; South Texas Veterans Healthcare System ; 7400 Merton Minter BLVD ; San Antonio ; TX ; 78229 ; USA
6. Department of Epidemiology and Biostatistics ; University of Texas Health Science Center San Antonio ; The South Texas Veterans Health Care System ; 7400 Merton Minter BLVD ; San Antonio ; TX ; 78229 ; USA

关键词：Extremity vascular injury ; Limb salvage ; Outcomes ; Transitions of care ; Service members ; Veterans ; Iraq ; Afghanistan

刊名：BMC Surgery

出版年：2015