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常用资源电子图书期刊论文学位会议外文资源特色专题内部出版物 
SpringerLink电子期刊(1)Elsevier电子期刊(28)
在“SpringerLink电子期刊”中，命中：1条，耗时：0.0109966 秒

在所有数据库中总计命中：29条

1. RARE-Bestpractices: a platform for sharing best practices for the management of rare diseases
作者：D Taruscio (23)
C Morciano (23)
P Laricchiuta (23)
P Mincarone (24)
F Palazzo (24)
CG Leo (24)
S Sabina (24)
R Guarino (24)
J Auld (25)
T Sejersen (26)
D Gavhed (26)
K Ritchie (27)
M Hilton-Boon (27)
J Manson (27)
PG Kanavos (28)
D Tordrup (28)
V Tzouma (28)
Y Le Cam (29)
J Senecat (29)
G Filippini (30)
S Minozzi (30)
C Del Giovane (30)
H Sch眉nemann (31)
JJ Meerpohl (31)
B Prediger (31)
L Schell (31)
R Stefanov (32)
G Iskrov (32)
T Miteva-Katrandzhieva (32)
P Serrano-Aguilar (33)
L Perestelo-Perez (33)
MM Trujillo-Mart铆n (33)
J P茅rez-Ramos (33)
A Rivero-Santana (33)
A Brand (34)
H van Kranen (34)
K Bushby (35)
A Atalaia (35)
J Ramet (36)
L Siderius (36)
M Posada (37)
I Abaitua-Borda (37)
V Alonso Ferreira (37)
M Hens-P茅rez (37)
FJ Manzanares (37)

23. National Centre for Rare Diseases ; Istituto Superiore di Sanit脿 ; Rome ; Italy
24. National Research Council ; Rome ; Italy
25. Jamarau ; London ; UK
26. Karolinska Institutet ; Stockholm county ; Sweden
27. Healthcare Improvement Scotland ; Edinburgh ; Scotland
28. London School of Economics and Political Science ; London ; UK
29. EURORDIS ; European Organisation for Rare Diseases ; Paris ; France
30. Associazione per la Ricerca sull鈥橢fficacia dell鈥橝ssistenza Sanitaria Centro Cochrane Italiano ; Milan ; Italy
31. University of Freiburg ; Freiburg ; Germany
32. Bulgarian Association for Promotion of Education and Science ; Plovdiv ; Bulgaria
33. Fundaci贸n Canaria de Investigaci贸n y Salud ; Las Palmas de Gran Canaria ; Canary Islands
34. Universiteit Maastricht ; Maastricht ; the Netherlands
35. University of Newcastle Upon Tyne ; Newcastle ; UK
36. The European Academy of Paediatrics ; Geneva ; Switzerland
37. Institute of Rare Diseases Research ; Instituto de Salud Carlos III ; Madrid ; Spain
刊名：Orphanet Journal of Rare Diseases
出版年：2014
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